She took me to the dermatologist, who diagnosed morphea. To start with, he prescribed topical cream and vitamin E supplements. It later left splashes all over my left leg, so we went to another dermatologist who diagnosed it as linear morphea.
The white patches eventually turned brown like a bad bruise. I tried to go to a tanning bed a couple of years after that, but the morphea started growing again and made a splash above my pubic bone on the left side.
Since then (I am thirty-four years old now), I have had no new patches. I stay out of the sun and use no creams. (The creams the doctors prescribed caused the veins to come to the top of my skin.)
I always thought there was a link to the sun and at fourteen, I had been on a high protein diet and lost around 30 pounds. I hope that some day they have a cure for this disease, and I will pray for everyone in this group.
Old Email Prefix: desiraye32
Story posted 4-20-01
Need new email 8-22-03 SLE
Story Artist: Shelley Ensz
Causes of Scleroderma
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.