It was hard to watch her going through all of that. She had a lot of difficulty breathing, and had to be on oxygen all the time. Her arms and hands would swell up and I remember the skin on her fingers was so tight and shiny.
I never once heard her complain. She bore it all with such dignity. On the day before she died, her daughter graduated from college. I thank God that she was able to make it to see her daughter walk down that isle and receive her diploma. She passed away that next day while laying on her living room sofa.
I still think of her very often, and truly miss her loving and caring ways.
Last summer I was diagnosed with Mixed Connective Tissue Disease (MCTD). I do not know what lies ahead for me on this path, I only hope that I can be as strong as my sister was.
Email: Withheld by request
Story edited 07-16-05 JTD
Story posted 07-19-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Cancer and Scleroderma
Mixed Connective Tissue Disease
Scleroderma Survivor's Stories
What is Scleroderma?
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.