Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Diane M: MCTD, and Surviving Sister of Scleroderma Patient

I only hope that I can be as strong as my sister was.

Koala Hugs for Diane by Sherrill Knaggs, ISN Artist My sister passed away six years ago at the age of forty-nine. She first was diagnosed with breast cancer. She had a mastectomy followed by chemotherapy. She then developed scleroderma.

It was hard to watch her going through all of that. She had a lot of difficulty breathing, and had to be on oxygen all the time. Her arms and hands would swell up and I remember the skin on her fingers was so tight and shiny.

I never once heard her complain. She bore it all with such dignity. On the day before she died, her daughter graduated from college. I thank God that she was able to make it to see her daughter walk down that isle and receive her diploma. She passed away that next day while laying on her living room sofa.

I still think of her very often, and truly miss her loving and caring ways.

Last summer I was diagnosed with Mixed Connective Tissue Disease (MCTD). I do not know what lies ahead for me on this path, I only hope that I can be as strong as my sister was.

To Contact the Author

Diane M.
Email: Withheld by request
Story edited 07-16-05 JTD
Story posted 07-19-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Cancer and Scleroderma
Pulmonary Fibrosis
Mixed Connective Tissue Disease
Scleroderma Survivor's Stories
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Dianne R: Crest, Pulmonary Fibrosis

We have the world's best supporters! See ISN News.


SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.

The most important thing in the world to know about scleroderma is!