I am fifty-seven years old and I have suffered from scleroderma for the past fifteen years. Everything started with slight numbness in my hands, followed by other symptoms. The tips of my fingers turned cold, and then became cyanotic, always hurt and in the end they became ulcerated.
In a month, they did a lot of tests, but only after a period in the Siena Hospital, after a painful experience, I was diagnosed with Raynaud's syndrome with limited systemic scleroderma. Until today my internal organs have not been compromised, the main problem is still my hands, that often present calcifications that are painful, and the joint pain. I take cortisone, aspirin for the microcirculation, and adalat crono 30, as well as one pill per week of alendronate for the bones.
Thanks for the attention and I am willing to hear your suggestions.
Email: [email protected]
Story edited 07-14-09 JTD
Story posted 07-21-09 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Dodo: Sclerodermia Sistemica Limitata
Cos'è la Sclerodermia
Raynaud Storie di Pazienti
Tipi di Sclerodermia: Limitata
Tipi di Sclerodermia: Limitata Storie
Digital Ulcer Stories
Limited Scleroderma Stories
Skeletal Involvement Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: