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Donato: Systemic Scleroderma with Raynaud's


Colored Crystal Glasses by Shelley EnszMy name is Donato. I discovered I am affected by this illness a year ago, following problems with my hands, where I lost sensibility and they got swollen in a particular way when it was cold. I checked into a specialized centre at the Bari hospital, and after several controls I got diagnosed with this illness.

At the beginning I didn't know what it was, but afterwards I got informed and I realized how serious it was. Right now I am following a treatment with Endoxan, Medrol, Trental, Pantorc, Cardirene.

I wrote to you for a recommendation from a doctor, I would like to know whether this is the right treatment since I have compromised my lungs to some extent, (bronchiectasis) and my esophagus only at the end.

Thank goodness I am fine, and the only problems are in my hands and the continuous coughing. Thank you.

To Contact the Author

Email: [email protected]
Story edited 03-20-09 JTD
Story posted 03-27-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin

Donato: Sclerosi Sistemica con Fenomeno di Raynaud
Cos'è la Sclerodermia
Tipi di Sclerodermia: Limitata
Tipi di Sclerodermia: Limitata Storie
Raynaud Storie di Pazienti

Raynaud's Stories
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Symptoms of Systemic Scleroderma
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What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Doni: CREST Syndrome

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)