It began in 1995, when I was diagnosed with Raynaud's Syndrome, but it wasn't given any importance, and I could not be cured.
With each passing year I added symptoms in several parts of my body, with multiple calcifications, so much so that I had to have three surgeries in a very short time. Nobody had ever understood what I went through nor helped me so I always took a turn for the worse.
Now I have perhaps found a good rheumatologist in Milano who could help me recover since finally, after thirteen years of suffering, he has given me a diagnosis and a cure, before it is too late…I hope.
Email: [email protected]
Story edited 12-09-08 JTD
Story posted 01-16-09 SLE
Story Artist: Ione Bridgman
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: