I was diagnosed with this illness eighteen months ago, and up to now my problems have only gotten worse. I am getting ulcers on my fingers and toes, and sometimes my hands turn either clear black or whitish.
I have a low income, and I was fired from my job since I cannot work as I used to.
I am searching for more information on this illness and I would like to know whether it is permanent or if I can find something that cures me.
Thank you very much.
Email:Withheld by Request
Story edited 06-26-06 JTD
Story posted 08-04-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español/Spanish) Elizabeth G: Esclerodermia Difusa Progresiva
(English) Diffuse Scleroderma
(English) Diffuse Scleroderma Stories
(English) Digital Ulcers
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.