Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Elizabeth O: Linear Scleroderma

I am afraid also because it goes through my left eye, which I see becoming smaller.

Needlepoint Bird by Shelley EnszI was diagnosed with linear scleroderma around six years ago. Initially they said it was solar lentigo, after a biopsy. Afterwards the diagnosis changed to lupus and finally, after more tests, a specialist diagnosed me with linear scleroderma (en coup de sabre).

I have it in my face and neck; it begins in the left side of my forehead, ending in my chin and I have a dark spot on the right side of my neck. People usually think it is the result of a car accident, since it is dark and deep. It is uncomfortable to have to explain my illness to others, but I must due to my work. I had a special exam and they told me that the illness has ceased, but sometimes I feel worse, as if the spot were becoming darker and deeper.

I am afraid also because it goes through my left eye, which I see becoming smaller. Also, I was sent to an aesthetic specialist, who told me that if I had cosmetic surgery to put fat in the depressed areas and particularly in the forehead, the result would not be flattering, and so I declined.

To Contact the Author

Elizabeth O.
Email:Withheld by Request
Story edited 01-25-11 SLE
Story posted 01-25-11 SLE

Story Translator: Alba León
Elizabeth O: Esclerodermia Lineal
Acerca de la Esclerodermia

Difficult Diagnosis
Difficult Diagnosis Stories
Eye Involvement
Eye Involvement Stories
Linear Scleroderma
Linear Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

Go to Ell: Morphea Scleroderma

We have the world's best supporters! See ISN News.


SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.

The most important thing in the world to know about scleroderma is!