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By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

(English) Flora: Systemic Scleroderma with Bronchial Allergic Asthma

(Italiano) Flora: Scleroderma Sistemica con asma allergico bronchiale

Rose for Flora by Shelley Ensz I am a young woman, age twenty-three, and in August of 1999, I was admitted to Saint Anna Hospital in Ferrara and diagnosed with systemic sclerosis.

I have also suffered from allergic asthma for around twenty years. At the moment, I have cyanosis of the hands with blue fingers and loss of strength. My breathing is currently under control. I must say, first of all, that before arriving at this diagnosis, I consulted many doctors at great expense and without satisfactory results.

I would like to understand much better the various aspects of my disease and the damage that it could cause me in order to answer my doubts, such as, will I be able to live a normal life?

I want to encourage all the people who suffer from scleroderma like me so that they manage to beat this disease. Thank you for this space that was given to me to tell of my experiences and talk about my disease.

To Contact the Author

New email address needed 12-20-06 SLE

Old Email Prefix: indevast
Story posted 11-27-99 SLE
Story edited 3-25-02 SLE
Story Edited 7-28-03 JTD/V1

Story Translator: Kevin Howell
English translation posted 6-18-02
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Difficult Diagnosis
(Italiano) Flora: Scleroderma Sistemica con asma allergico bronchiale
(Italiano) Sclerodermia dalla A alla Z
(English) Raynaud's (blue fingers)
(Italiano) Raynaud's
(English) Systemic Sclerosis
(English) Systemic Sclerosis

This Story is Featured in Voices of Scleroderma Volume 1

Voices of Scleroderma Volume 1 The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!

ISN Translator: Kevin Howell

Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Fran: Undifferentiated Connective Tissue Disease (UCTD)

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)