After years of suffering from a long list of unexplained complaints (fatigue, muscle/joint pain, rashes, fever), I was diagnosed with UCTD in June of 1998 by my rheumatologist. At that time, I was overwhelmed with my upcoming wedding and the possibility of being "sick."
Although I had Lyme Disease in 1989, my doctor did not feel there was any connection between the two. My rheumatologist suggested I try plaquenil, which I did. I suffered from adverse side effects including severe pain in both of my eyes. I was taken off that medication and told that I could treat my symptoms with anti-inflammatory medications as needed and see how I did. My doctor suggested taking EPA Fish Oil tablets daily which proved to be extremely helpful with my symptoms.
I got married in August of 1998 feeling great, and I continued to do well until June of 1999. All of the symptoms reappeared — muscle pain, rashes, fever, lethargy. I went back to my rheumatologist last week and he confirmed my diagnosis as UCTD and ran extensive blood tests.
It is so frustrating to be diagnosed with something starting with "undifferentiated." Although I do not hope to be diagnosed with a specific disease, I wish I knew what was wrong with me. I am so tired of hearing people say, "It's just stress," or "Maybe it's the weather," or "You could be run down." My symptoms are real and at thirty-one, I feel like I am ninety years old when I experience a flare up.
I will be getting my blood test results in two days, although I do not expect to get any definitive answers.
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Old Email Prefix: fran74
Story posted 7-20-99 SLE
Story Artist: Shelley Ensz
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.