I am sixty-one years old, and I discovered I had this illness eleven years ago. Most likely I had it two years before, but nobody understood what was wrong.
For ten years I went to the city of Vercelli to get treatment and I felt quite well, but of course I didn't really know what was happening to me. I am now following treatment closer to home.
I don't know what else to say at this moment, because I am absolutely scared of asking why so many things are happening to me at the same time. I am depressed to the point that when the doctors talk, I do not understand a word.
I thought about writing, perhaps someone here can understand what I am going through.
Email: [email protected]
Story posted 06-03-11 SLE
Story Artist: Shelley Ensz
Franchina: Sclerosi Sistemica
Cos'è la Sclerodermia
Emotional Adjustment: Coping
Emotional Adjustment Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.