I am fifty-seven years old, and three years ago I was diagnosed with Sjogren's Syndrome but, in reality, I have been suffering from it for almost thirty years.Before the final diagnosis, my doctor sent me for numerous specific tests, after which he drew his conclusions.
Ten years ago, I had autoimmune pericarditis. I suffered so much! I took various medicines, but the problem did not clear up.
Three years ago, I underwent a pericardectomy and I hoped that everything would be resolved; instead I continue to have chest pain and I still can't cope without taking steroids for it. I have had salivary gland biopsies. I am suffering from rheumatoid arthritis, and I have serious problems with my eyes. The lack of tears has caused inflammation of the corneas. I have strong pain and intestinal problems, all due to Sjogren's Syndrome. I often get tired when I walk a bit quickly or after any effort.
Currently, I am under the care of an immunologist at Niguarda Hospital in Milan, and I am taking many medications including painkillers when needed. Despite all these problems, I nonetheless go forward with the hope that a treatment for this disease will be found.
Email: [email protected]
Story posted 1-02-01
Story edited 3-25-02
Story translation by Kevin Howell posted 6-18-02
Story edited VH1: JTD 9-9-03
Story Editor V1: Judith Devlin
(Italiano) Franco: Sindrome di Sjögren
(Italiano) Sclerodermia dalla A alla Z
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: