(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

Gaynor: Morphea and Possible Systemic Sclerosis

I am taking my husband with me when I get them so he will realize that I am not imagining how I am feeling.

I was diagnosed in 2003 with morphea. It began as a bruise-like patch on my upper right arm. I ignored it for months before going to see my general practitioner (GP) who referred me to a skin specialist who did various tests including a biopsy.

After receiving the results, they prescribed a cream that I needed to use three times a week but it did not have any effect.

I moved to a new area twelve months after my diagnosis and had to change doctors. When I kept suffering from bad acid reflux, I was sent in to hospital for a endoscopy and was prescribed medication. Within the next few months I began having recurrent chest infections and sore throats. My blood pressure was also high, which I never had before.

I was referred to a chest specialist who has been brilliant. I feel he has good knowledge of this disease. I have just had a CT scan, various blood tests and lung function tests and should know the results in three weeks.

I did not even know there was a web site for us. My husband and family have little knowledge of this disease and say that I am imagining the tightness in my shoulders, legs and feet. Each day I wake up I have these symptoms and when I have sat in the same position for a period of time.

I am just hoping that when my results come through that I can get some treatment to help ease these things. I am taking my husband with me when I get them so he will realize that I am not imagining how I am feeling.

To Contact the Author

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.

We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

The most important thing in the world to know about scleroderma is sclero.org!