My story starts eight years ago when I was twenty-three years old and about eight months pregnant with my second child. I noticed some skin pigmentation changes on the back of my left leg. I put it off thinking it had something to do with my pregnancy.
I kind of wondered about it for a year. I went in for a yearly check-up and showed my doctor. He immediately was concerned and took blood tests and a biopsy. Well my blood test came back with a highly positive ANA test (380). From there I was sent to rheumatologists and dermatologists. Some diagnosed me with linear scleroderma and some with morphea.
The last doctor I saw told me that unless I was having any problems I really did not need to see him again. Well, not only did the whole back of my left leg turn hard and purple, but my left ankle and foot are also affected. My abdomen is covered, the sides of my breasts and upper rib cage (on the side). My upper arms are showing spots. The front of my left leg is covered.
At times I really try to put it out of my mind and be thankful that it is not systemic. But, every time I notice new areas turning color it really worries me. I have also noticed when those new areas appear I am extremely tired and experience bouts of vertigo.
I do not know if it's at all connected. I just wanted to reach out and see if anyone had any words of wisdom for me. Thanks.
New email address needed.
Old Email Prefix: coate
Story posted 8-26-01
New email address needed 8-31-03
Story Artist: Shelley Ensz
Pregnancy and Scleroderma
Types of Scleroderma
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: