I am a thirty-nine-year-old woman. About a year ago I got diagnosed with Raynaud's, since the tip of my fingers had withered. I followed a treatment of iloprost, and afterwards they gave me pills that I had to take every day.
In 2008 my home doctor suggested I went to the hospital in Monza where I underwent several tests and they told me my ilness was systemic sclerosis. Since I didn't know what that was, I searched online for it.
Either way, I am getting worse, the Raynaud's is persisting, even in summer (think almost 35 degrees Celsius), it has begun extending to my stomach and bones. I do not know what else to do.
If anybody could help me I would be very grateful. Thanks from the bottom of my heart for allowing me to write.
Email: [email protected]
Story edited 03-20-09 JTD
Story posted 03-27-09 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: