SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Isabo: Raynaud's and Systemic Sclerosis


Mary's Fruit Bowl by Shelley EnszI am a thirty-nine-year-old woman. About a year ago I got diagnosed with Raynaud's, since the tip of my fingers had withered. I followed a treatment of iloprost, and afterwards they gave me pills that I had to take every day.

In 2008 my home doctor suggested I went to the hospital in Monza where I underwent several tests and they told me my ilness was systemic sclerosis. Since I didn't know what that was, I searched online for it.

Either way, I am getting worse, the Raynaud's is persisting, even in summer (think almost 35 degrees Celsius), it has begun extending to my stomach and bones. I do not know what else to do.

If anybody could help me I would be very grateful. Thanks from the bottom of my heart for allowing me to write.

To Contact the Author

Email: [email protected]
Story edited 03-20-09 JTD
Story posted 03-27-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin

Isabo: Fenomeno di Raynaud e Sclerosi Sistemica
Cos'è la Sclerodermia
Raynaud Storie di Pazienti

Raynaud's Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Ivone: Morphea

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.