Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Jacqueline: Morphea Scleroderma

My doctor did not explain the disease very well to me.

Black Eyed Susan for Jacqueline by Shelley Ensz I am a twenty-one-year-old female. I was diagnosed with morphea when I was a junior in high school.

Thank God for dermatology. However my doctor did not explain the disease very well to me. I have multiple grayish/brown/ and white spots on my sides, stomach, and back. The one on my left side is huge!

I was given steroid injections so it would not show through my beautiful prom dress but it was no use. I only received a few injections and after high school I almost forgot about my morphea.

I was in one of my Occupational Therapy classes today when a classmate presented a fact sheet on scleroderma. I was shocked! I had never heard anything about it!

I was recently beginning to want to do something about the many spots because they are so ugly. I do realize I am very lucky and hope I can handle these. I am just wondering if I will get more if it's over? Thanks for listening!

To Contact the Author

New email address needed.
Old Email Prefix: jacq1400
New email address needed 07-18-06 SLE
Story posted 6-12-01

Story Artist: Shelley Ensz

Morphea Scleroderma
Go to Jacquie: Diffuse Scleroderma

Giving Assistant
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE button.


TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.

The most important thing in the world to know about scleroderma is!

Donate Now
Copyright 1998-2018, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.