SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
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Joe S: Morphea Scleroderma

I have too many bruise-like marks on my body to count.

Pumpkins by Shelley Ensz I am forty-two and have had morphea for about fifteen years now. I have too many bruise-like marks on my body to count. Fortunately, I have none on my face.

It is hard to tell whether I have gotten any new marks. I cannot tell the new from the old any more.

I am just starting to notice some arthritic pain in most of my joints. I still live quite a normal life. I am very active athletically and have not let my morphea take over my life.

All I want to say is that your life will go on. Do what makes you happy: pray, fish, ride motorcycles, whatever — just remember there is someone out there worse off than you, and use your mind to make yourdreams come true.

Email the Author

Joe S.
[email protected]
Story posted 11-18-01
Story edited 9-1-03 SLE

Story Artist: Shelley Ensz
Morphea Scleroderma
Go to John: Surviving Son-in-Law of Scleroderma Patient

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)