I am forty-two and have had morphea for about fifteen years now. I have too many bruise-like marks on my body to count. Fortunately, I have none on my face.
It is hard to tell whether I have gotten any new marks. I cannot tell the new from the old any more.
I am just starting to notice some arthritic pain in most of my joints. I still live quite a normal life. I am very active athletically and have not let my morphea take over my life.
All I want to say is that your life will go on. Do what makes you happy: pray, fish, ride motorcycles, whatever — just remember there is someone out there worse off than you, and use your mind to make yourdreams come true.
| Joe S.
Story posted 11-18-01
Story edited 9-1-03 SLE
Story Artist: Shelley Ensz
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.