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John: Surviving Son-in-Law of Systemic Scleroderma Patient

Sandy, you will be truly missed.

Phone and Coffee by Nolan LaTourelle My mother-in-law found out that she has systemic scleroderma a number of years ago. She has been progressing downward. She since has been admitted to the ICU for a heart attack.

She had worked as a custodian for a number of years, and that may be a factor in causing her scleroderma as she had worked with and had been exposed to a number of chemicals that had possibly brought on the scleroderma. Has anyone else out there been a custodian and now suffers this affliction?

~ Update 7-18-04 ~

I am sorry to say since my last entry, my mother-in-law passed away. Her TPN tube (feeding tube) became infected which entered her blood stream, causing several of her organs to shut down. She was a very brave woman who never complained about her bowel obstructions which became more frequent. She lived life to the fullest, keeping her family close to her, because of this I believe she was able to live fifteen years with the disease.

She had systemic scleroderma that affected her internal organs. Sandy fought hard and tried everything to combat this disease. Her TPN was a life saver as her stomach no longer worked. The TPN added several years to her life, several years that she spent watching her three grandsons play hockey and her granddaughter sing in the church choir. She also cherished these years with her best friend, soul mate, and husband of forty years.

Sandy, you will be truly missed.

To Contact the Author

New email address needed 08-06-09 SLE
Old Email Prefix: jktoneguzzi
Posted 11-15-00
Email address updated 1-30-02
Story edited V1 JTD 7-27-03
Story update posted 7-19-04 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
Bowel Involvement
Cardiac (Heart) Involvement
Causes of Scleroderma
Survivor Stories
TPN tube (feeding tube)
Types of Scleroderma

This Story is Featured in Voices of Scleroderma Volume 1

Voices of Scleroderma Volume 1 The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to John B: Eosinophilic Fasciitis or Scleroderma-Like

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)