Over the wintertime we noticed a large bruise like mark over the lower part of her right buttock. She also had various patches that went down her right leg. They are ivory colored patches surrounded by a darker border.
We had gone to an adult dermatologist and he diagnosed her as having something completely different. I scheduled an appointment with the pediatric dermatologist who immediately knew what it was by looking at it. It was biopsied and shown to be Linear Morphea Scleroderma with a lot of inflammation.
We also had ANA and DNA titres drawn and they came back negative. Our course of therapy has been a topical ointment called Protopic, an immuno-suppressant, and Plaquenil, an anti-inflammatory, twice a day.
My daughter, who is eight years old, has really done well with the medications and the whole diagnosis. We have been to an orthopedist for a baseline check of her symmetry and right now everything seems to be okay with her growth. We were told that if we can get her through her growth spurt with good growth she should do just fine.
I would like to know if anyone has taken these medications and what their success has been. If we see no improvement with these medications, I believe the next step is the Methotrexate.
I would love to hear from you.
New email address needed.
Old Email Prefix: djcowell
Story edited 10-24-02 SLE
Story posted 11-03-02 SLE
New email address needed 08-03-09 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Saba Sadiq
Saba Sadiq is the ISN Story Editor for this story.
Many thanks to our recent donors, Jack and Elizabeth Lewis, Network for Good, Shirley Miller, Reata Pharmaceuticals, and United Way of Snohomish County! See ISN News for more donors. Click Here to Donate.
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: