Hi, my name is Judy King and I was first diagnosed with scleroderma in November 1997. However, I first noticed my fingers turning white during very cold weather in 1993, and through my own research, I diagnosed myself with Raynaud's.
When I was diagnosed in 1997, it was because my middle finger on my right hand become infected on the tip and just under the nail. My family doctor treated it with several antibiotics which did not help. Then, he decided to do a blood test to rule out lupus, which it did, but instead it showed I have scleroderma.
My finger became progressively worse until in March 1998 I was told that amputation was necessary. My rheumatologist referred me to a neurosurgeon who performed a digital sympathectomy on my right hand and, thank God, my finger was saved.
I have esophageal difficulties, including swallowing, GERD, severe heartburn, and problems with different foods. Pain all over my body is my constant companion because of scleroderma, and I also have 7 herniated discs in my lower back.
I have just recently had to quit work and file for my Social Security Disability. I do not worry about my future, I just take one day at a time.
New email address needed.
Old Email Prefix: judyk
Story posted 5-10-01
Email note posted 01-20-05 SLE
Story Artist: Shelley Ensz
Difficulty Swallowing (Dysphagia)
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: