SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

K Thompson: Daughter of Scleroderma Patient

My father is going to a scleroderma specialist now.

Bunny Wreath by Shelley Ensz Hello! My father was diagnosed with scleroderma in January 1997. He had been having problems with his heart and had to have stents put in for blocked arteries. This is when the doctors found this condition.

He has the greatest faith of anyone I know. He never complains about anything, although I know he feels ill a lot

He was born and raised in Brewton, Alabama. He has done a variety of work throughout his life. He has been a welder and painter. He now suffers mostly in his neck, arms, and knees. He lays around a lot of his time. It took about six months for the doctors to diagnose him completely. He is now fifty-five years old and on disability.

He is going to a scleroderma specialist now and having more blood work done. His throat has been bothering him for some time.

Anyone interested in contacting us, please feel free. We would love to hear from you and find out about your story. Please keep us in your prayers and never ever give up! Godspeed!

To Contact the Author

K. Thompson
New email address needed 09-26-06 SLE
Old Email Prefix: Kelseyt7
Story posted 1-20-01
Story edited 7-27-03 SLE

Story Artist: Shelley Ensz
Difficult Diagnosis
Heart Involvement
Scleroderma Specialists
Throat (G.I. Involvement)
Types of Scleroderma
Go to Kym: Diffuse, CREST Scleroderma, Lupus and Fibromyalgia

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)