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SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
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Karen G: Spouse of Scleroderma Patient

Has anyone ever had an iloprost infusion?

Emmett - for Karen G by Shelley Ensz My husband has scleroderma and we would like to know if anyone has ever had an Iloprost infusion.

He was told last week that he should have this but we are both unsure. It means going into Hope Hospital for about six to eight days.

Has anyone ever had this, and does it work? Thanks.

Webmaster's Note: In severe instances of Raynaud's, where gangrene or loss of a digit is possible, some doctors have had success with prostaglandin (Iloprost) infusions.

To Contact the Author

Karen
[email protected]
Story posted 3-11-01

Story Artist: Shelley Ensz
LINKS
Raynaud's: Prostaglandin (Iloprost)
Go to Karen H: Eosinophilic Fasciitis
 

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)