I have been living with Eosinophilic Fasciitis (EF) for about eight months now. My symptoms first began as pain in my shoulders. I went to my doctor who said I needed physical therapy.
Soon after, I started noticing swelling in my upper arms. It was a large, hard knot. I could feel heat coming from it. After several visits to several different doctors, a rheumatologist ordered a muscle biopsy which revealed my results.
By then I was having severe pain in both shoulders, wrists, hips, knees, and ankles. I was treated with Prednisone which greatly resolved my pain for a while. I have now had to come off of it due to osteoporosis. I am experiencing extreme fatigue and muscle pain on a daily basis.
I have somehow continued to work but it is becoming increasingly harder to do my job. I am still in the process of being treated and am not sure how long this disease will last. I am only thirty years old and I have three children. I would love to be able to get on with my life. I do not want to give up my career that I have worked so hard for but I am not sure how much longer I can live like this.
I hope this story helps someone else like the ones I read have helped me. Since this seems to be so rare it is a comfort knowing that someone else can relate to what I am going through.
Email: Withheld by request
Story edited 11-20-06 JTD
Story posted 11-27-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Diseases Similar to Scleroderma
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: