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Karligash: Systemic Scleroderma

Level 5, level 3 activity, stage 3, affecting skin, joints, intestines, lungs, kidneys, Raynaud's syndrome. Severe Iron/Mixed deficiency anemia (iron and B12 deficiency)

Patio Flowers by Shelley EnszYoung, beautiful, full of hope and expectations for my life, for happiness and love — that was me, nineteen years of age. And then scleroderma destroyed it all. Doctors couldn't figure out what was wrong with me for nearly a year, all the while I was getting worse by the hour. Only when it got so bad that I couldn't even brush my hair and needed to be helped to the bathroom, they finally diagnosed me.. They gave me a big dose of prednisolone right away and that saved my life.

I am 31 now — disfigured, old woman, mad at the world, just living out the rest of my life in these four walls.

Hope dies last, could it be that the cure have been found for Systemic Scleroderma now?

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Email [email protected]

Story Translated by Igor Makarov 06-24-09
Story posted 06-26-09 SLE

Карлыгаш: системная склеродермия
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Go to Kasey: Daughter of a Diffuse Scleroderma Patient

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

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