Katia C: Sister of a Scleroderma Patient
Italy
I am the sister of a diffuse scleroderma patient. She is forty-two years old. A year and a half ago she was diagnosed with Raynaud's. Due to this she had a scleroderma related renal crisis which made her blood pressure higher and she developed ischemia.
Now she is recovering at the hospital, after a scleroderma related renal insufficiency. She is in the acute phase of the illness, and she has a hardened skin, third degree, that has affected her hands, arms, chest and legs. Now she is hospitalized because her illness has taken her kidneys and she is at risk of dialysis and cutaneous hardening in the third degree.
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Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.