SCLERO.ORG
Search
SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Katia C: Sister of a Scleroderma Patient

Italy

Pink Rose and Butterflies by Shelley EnszI am the sister of a diffuse scleroderma patient. She is forty-two years old. A year and a half ago she was diagnosed with Raynaud's. Due to this she had a scleroderma related renal crisis which made her blood pressure higher and she developed ischemia.

Now she is recovering at the hospital, after a scleroderma related renal insufficiency. She is in the acute phase of the illness, and she has a hardened skin, third degree, that has affected her hands, arms, chest and legs. Now she is hospitalized because her illness has taken her kidneys and she is at risk of dialysis and cutaneous hardening in the third degree.

To Contact the Author

Katia
Email: [email protected]
Story edited 07-14-09 JTD
Story posted 07-18-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Italian:
Katia: Sclerodermia Diffusa
Cos'è la Sclerodermia
Raynaud
Raynaud Storie di Pazienti

English:
Caregiver Resources
Caregiver Stories
Diffuse Scleroderma
Diffuse Scleroderma Stories
Kidney (Renal) Involvement
Kidney Involvement Stories
Raynaud's
Raynaud's Stories
Sclerodactyly
Sclerodactyly Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Katie: Morphea
 

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)