Kim K: Mother of Morphea Patient The dermatologist said they hoped this medicine would help the morphea stop growing. So far it is still growing. I am now worried that it is starting on her forehead…
Since the age of five my daughter has had continuous serious sinus infections. She has had four pic lines for antibiotics because of the type of infections/bacteria she gets. On average she is on oral antibiotics ten months a year.
At six years of age I noticed two little white spots the size of nickels on each of her hips. I thought it was her jeans rubbing against her skin. At seven those spots grew to the size of quarters. More spots were cropping up.She had large white spots that covered the back of her hands. With each doctor visit I would ask what they thought these spots were. They never knew.
Finally, we brought our daughter to the Mayo Clinic in Rochester, Minnesota. We brought her there because of her sinus problems, but when the ENT looked at her hands he sent her to the dermatologist. The dermatologist took a punch biopsy of spot on her hip (which were by then the size of oranges). They thought she had lichen sclerosis. The results came back as morphea scleroderma.
Because my daughter has spots on her hips, tummy, sides, hands and feet they put her on a dose of methotrexate and folic acid. The dermatologist said they hoped this medicine would help the morphea stop growing. So far it is still growing. I am now worried that it is starting on her forehead.
I would like to know if there is a connection between her sinus infections and the morphea. It seems really strange to be dealing with two problems. Have any of you experienced these two problems at the same time?
Webmaster's Note: As it happens, although it is understandable to pose this question, there is no relationship that we are presently aware of between sinus infections and morphea. It is very common for illnesses to overlap without having any relationship to each other. We do have a very large section on Causes of Scleroderma which you may be interested in. Please be sure to notify her scleroderma expert about the spots beginning on her forehead since it could possibly be en coup de sabre, a form of linear scleroderma which can overlap with morphea.
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Story posted 06-03-11 SLE
Story Artist: Shelley Ensz
Causes of Scleroderma
En Coup de Sabre
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Juvenile Scleroderma Stories
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SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.