Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Kim K: Mother of Morphea Patient

So far it is still growing. I am now worried that it is starting on her forehead.

Kim K: Mother of Morphea Patient The dermatologist said they hoped this medicine would help the morphea stop growing. So far it is still growing. I am now worried that it is starting on her forehead…

Fish by Shelley EnszSince the age of five my daughter has had continuous serious sinus infections. She has had four pic lines for antibiotics because of the type of infections/bacteria she gets. On average she is on oral antibiotics ten months a year.

At six years of age I noticed two little white spots the size of nickels on each of her hips. I thought it was her jeans rubbing against her skin. At seven those spots grew to the size of quarters. More spots were cropping up.She had large white spots that covered the back of her hands. With each doctor visit I would ask what they thought these spots were. They never knew.

Finally, we brought our daughter to the Mayo Clinic in Rochester, Minnesota. We brought her there because of her sinus problems, but when the ENT looked at her hands he sent her to the dermatologist. The dermatologist took a punch biopsy of spot on her hip (which were by then the size of oranges). They thought she had lichen sclerosis. The results came back as morphea scleroderma.

Because my daughter has spots on her hips, tummy, sides, hands and feet they put her on a dose of methotrexate and folic acid. The dermatologist said they hoped this medicine would help the morphea stop growing. So far it is still growing. I am now worried that it is starting on her forehead.

I would like to know if there is a connection between her sinus infections and the morphea. It seems really strange to be dealing with two problems. Have any of you experienced these two problems at the same time?

Webmaster's Note: As it happens, although it is understandable to pose this question, there is no relationship that we are presently aware of between sinus infections and morphea. It is very common for illnesses to overlap without having any relationship to each other. We do have a very large section on Causes of Scleroderma which you may be interested in. Please be sure to notify her scleroderma expert about the spots beginning on her forehead since it could possibly be en coup de sabre, a form of linear scleroderma which can overlap with morphea.

To Contact the Author

Kim K
Email: [email protected]
Story posted 06-03-11 SLE

Story Artist: Shelley Ensz
Caregiver Resources
Caregiver Stories
Causes of Scleroderma
En Coup de Sabre
En Coup de Sabre Stories
Juvenile Scleroderma
Juvenile Scleroderma Stories
Morphea Scleroderma
Morphea Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
Go to Kimmy: Morphea

Many thanks to our recent donors, Jack and Elizabeth Lewis, Network for Good, Shirley Miller, Reata Pharmaceuticals, and United Way of Snohomish County! See ISN News for more donors. Click Here to Donate.


TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.

We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, report bad links, or update page content. Disclaimer. Privacy Policy.

The most important thing in the world to know about scleroderma is!