Hi, my name is Kim. I just turned sixteen in September. My morphea started off as a little bump on my stomach. I thought it was very weird so I went to a doctor. He diagnosed it for ten months as a cyst. Then I finally requested to have the cyst removed. So I went to a surgeon and he said that is not a cyst, it is a disease. The surgeon referred me to a dermatologist and that is when I was diagnosed with morphea.
This has been going on for eleven months. Now I am seeing a rheumatologist and I hope that this will stop growing. A big part of it is on my stomach, but now it also extends down to my right leg.
If you have experienced morphea, please any comments would help. I do not know what all should be done.
Kimmy Email: [email protected] Story posted 10-26-04 Posted in Newsroom 12-12-04 SLE ISN Senior Artist: Sherrill Knaggs Story Editor: Judith Devlin |
LINKS Juvenile Scleroderma Morphea PDF Brochure: What is Scleroderma? Types of Scleroderma |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: