I am fifty-three years old, a wife, mother, grandmother, and a real estate broker in Nebraska. I was recently diagnosed with scleroderma, perhaps diffuse scleroderma, as the pigmentation is symmetrical on both arms.
I am glad to finally have an answer after years of tests with no results. I am interested in knowing more about the first indications of bowel, heart, and lung involvement.
I am presently on several antirheumatic medications, a sleep aid, and a drug to treat neuropathy (burning sensations.)
For the last three years, I have had positive RH factors; they are now negative. What has helped me most with the irritable bowel syndrome (IBS), believe it or not, is to have an instant breakfast shake every day.
I have a good attitude, a great husband, and a supportive and loving family. The hardest part of this was telling my family, as we knew someone my age who recently passed away from complications of systemic scleroderma.
New email address needed.
Old Email Prefix: nlpartners
New email address needed 07-18-06 SLE
Story posted 10-28-01
Story Edited 7-28-03 JTD/V1
Story Artist: Shelley Ensz
Story Editor: Judith Devlin
Irritable Bowel Syndrome
Types of Scleroderma
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: