Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Lorna: Undiagnosed Scleroderma?


Silver Shoes Hi, my name is Lorna. I am thirty-three years old and have just gotten a computer.

When I was twenty-one, I was rushed to the hospital. I could not breath properly. At that time I was living in London and working in a pub. I woke up one morning and could not get a good breath.

I had always suffered from sore hands and feet. Anyway, when I went to the hospital this young doctor came in and looked at my hands. He said that he thought I had Raynaud's and scleroderma. I did not know what he was talking about. After a lot of different tests they put me on pills I had never heard of. I took them but did not feel any better.

It has been twelve years since then and I still do not know what kind of scleroderma I have. I have had a pain in my side for two years. The doctors do not know what it is so what am I to do? Is it all in my head? With the pain I live with, I do not think so.

I have two beautiful daughters and they keep me going. Well, I could go on and on, but what is the point if no one really listens.

To Contact the Author

Email: [email protected]
Story edited12-16-04 JTD
Story posted 1-3-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Difficult Diagnosis
PDF Brochure: What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Lorrie: Limited Scleroderma/CREST

Giving Assistant
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE button.


TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.

The most important thing in the world to know about scleroderma is!

Donate Now
Copyright 1998-2018, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.