When I was twenty-one, I was rushed to the hospital. I could not breath properly. At that time I was living in London and working in a pub. I woke up one morning and could not get a good breath.
I had always suffered from sore hands and feet. Anyway, when I went to the hospital this young doctor came in and looked at my hands. He said that he thought I had Raynaud's and scleroderma. I did not know what he was talking about. After a lot of different tests they put me on pills I had never heard of. I took them but did not feel any better.
It has been twelve years since then and I still do not know what kind of scleroderma I have. I have had a pain in my side for two years. The doctors do not know what it is so what am I to do? Is it all in my head? With the pain I live with, I do not think so.
I have two beautiful daughters and they keep me going. Well, I could go on and on, but what is the point if no one really listens.
Email: [email protected]
Story edited12-16-04 JTD
Story posted 1-3-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
PDF Brochure: What is Scleroderma?
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.