When I was twenty-one, I was rushed to the hospital. I could not breath properly. At that time I was living in London and working in a pub. I woke up one morning and could not get a good breath.
I had always suffered from sore hands and feet. Anyway, when I went to the hospital this young doctor came in and looked at my hands. He said that he thought I had Raynaud's and scleroderma. I did not know what he was talking about. After a lot of different tests they put me on pills I had never heard of. I took them but did not feel any better.
It has been twelve years since then and I still do not know what kind of scleroderma I have. I have had a pain in my side for two years. The doctors do not know what it is so what am I to do? Is it all in my head? With the pain I live with, I do not think so.
I have two beautiful daughters and they keep me going. Well, I could go on and on, but what is the point if no one really listens.
Email: [email protected]
Story edited12-16-04 JTD
Story posted 1-3-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
PDF Brochure: What is Scleroderma?
We have the world's best supporters! See ISN News.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: