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Luca: Difficult Diagnosis-Incomplete


Pansies by Shelley EnszHello everyone, my name is Luca and for a few years now I have been suffering a lot of pain in the sternum and the arms. Every doctor's appointment I have had has turned out negative results, except for a high level of white blood cells, but I am really sick. I don't know what else to do, I do not live well. I have been told oftentimes that my symptoms are imaginary, but that's not the case.

My mother died from Granulomatosis with Polyangiitis (formerly Wegener's Granulomatosis), and I am finding the same symptoms. However, I have been tested, all negative. These are my symptoms: joint pain, bone pain, fever, the inside of my mouth is irritated, as if I had burned it. For a while now I haven't been able to digest correctly, but the most painful are still the pains in my sternum. I have also had EKGs, but to no avail. This week I got tests again, the only thing that was out of the normal levels was cholesterol, and also triglycerides, as well as my white blood cells.

Please answer, as I feel really sick. Thanks for everything.

To Contact the Author

Email: [email protected]
Story edited 07-14-09 JTD
Story posted 07-22-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin

Luca: Dificulta Diagnosa Incompleta
Cos'è la Sclerodermia

Difficult Diagnosis
Difficult Diagnosis Stories
Medical: Diseases and Symptoms
Granulomatosis with Polyangiitis

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Lucia: Scleroderma

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)