SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Lyn: Systemic Sclerosis

I was pretty sick for a couple of years.

I first started having symptoms when I was fifteen years old. My mother took me to the doctor and that is where I learned that I had Raynaud's. I did pretty well for the rest of my teenage years just having problems in the winter and with really cold items.

I got married when I was twenty-one and really felt good. The next year in July I started not feeling well. I went to see my rheumatologist and that was when I was diagnosed with systemic scleroderma and rheumatoid arthritis. I was pretty sick for a couple of years.

At around the age of twenty-five, I decided I wanted a baby. Doctors warned me about the risks and said that was not the greatest idea because I was not in remission and was on a chemo drug which I had to stop first for three months. I decided to do it anyway knowing in my heart it was going to be okay. I never doubted having a baby once. I got pregnant right away. I had to have a lot of ultrasounds and stress tests, but it was worth it. I had a wonderful beautiful healthy little girl who is the light of my life.

I am twenty-nine now and my daughter is almost three years old. I work full time as an office manager for a gastroenterologist and keep up with a very busy life. I still have the disease and deal with it daily. I have realized some things, though. I thought my life was ending and that I would never have that little girl I always wanted. I was wrong. I did make it through somehow.

I realized I was a strong woman and that even though I had been given this horrible disease, I still had many blessings in my life. I want to let people know that we can be okay if we get diagnosed with scleroderma and with more awareness and research we are closer every day to finding a cure.

Do not give up on yourself and do not give in. Fight it and take care of yourself because you are a blessing to the world!

To Contact the Author

Email: [email protected]
Story edited 05-27-06 JTD
Story posted 08-03-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Raynaud's Stories
Rheumatoid Arthritis (RA)
Rheumatoid Arthritis Stories
Systemic Scleroderma (SSc)

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Lynn: Lupus, Scleroderma, Sjögren's and Polymyositis Overlap

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.