In the fall, I was prescribed ciprofloaxin for a bladder infection and a week later I had a red rash and hives on the arms, back, and legs and later the skin peeled as if I had a sunburn. I had to seek medical help when I realized that it was spreading and getting considerably worse.
I went to my family doctor and had tests that ruled out scleroderma, and several other diseases. I was referred to the Mayo Clinic in Scottsdale, Arizona, and was given a topical ointment which was so greasy it was hard to use. Biopsies were taken of two different spots.
I was diagnosed with lichen sclerosus et atrophicus and generalized morphea. The dermatologist prescribed UV Narrowband treatments, which I did for two weeks, three times a week. We then returned to Iowa and I had to go to another doctor and was started on UVB light treatments and have had seven sessions. I quit using all prescription creams.
For showering I use a gentle body cleanser and wash it off with lukewarm water and then pat dry and put on cetaphil body lotion.
My skin that is affected is on both arms, from wrist to armpits, both sides of my stomach from below my breasts to below the navel along the sides, on my lower back and spots on back of shoulders. Also behind both knees on the front of my shins and a few random spots near knees and along back of my arms.
After six weeks of treatment I will return to the doctor to assess the treatment. I feel better after treatments, but my skin is taut and it really hurts if I move around very much.
~ Update 02-04-08 ~
After having UV light therapy all summer, my skin started to improve slightly in July, and I stopped treatments the last part of October 2007. We were getting ready to leave for Arizona for the winter. I quit using all lotions and creams as they only irritated my skin and made it burn. But it has improved as I can now wear normal clothing. I have improved quite a bit but still have a way to go. The skin is red in spots and a little sore, other areas are either white rough splotches. All the original area is still affected but just not as bad or as painful.
Email: [email protected]
Story edited 04-25-07 JTD
Story posted 04-25-07 SLE
Story update edited 02-04-08 JTD
Story update posted 02-04-08 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: