My name is María. I am the mother of a seven-year-old boy who was diagnosed with this illness. When the dermatologist gave me the diagnosis I had no reaction, since I didn't know what it was really about.
But a few months later I began doing some research and realized how serious it was. I do not understand whether localized scleroderma is equally as dangerous as others. My little boy just began with a spot in the back of the leg, all the way to the ankle. There he also has two scars, one roughly 2x4 cm, and another circular one above his knee, about half a centimeter wide.
After using the cream the doctor prescribed, I see that his scar has not gotten worse, and his skin tone is going back to normal. Was this bound to happen or is the illness under control?
I would like some orientation, I have been helpless for days. If someone could help, I'd be grateful for life.
Maria Email: [email protected] Story edited 01-09-10 JTD Story posted 04-29-10 SLE Story Artist: Shelley Ensz Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS Español/Spanish: Maria D: Esclerodermia Localizada Acerca de la Esclerodermia English: Caregiver Resources Caregiver Stories Juvenile Scleroderma Juvenile Scleroderma Stories Morphea Scleroderma Morphea Stories Medical: Diseases and Symptoms Scleroderma Experts (Worldwide) Sclero Forums *Online Support Group!* Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
ISN Translator and Editor: Alba León
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Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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