(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

Marina C: CREST Patient

Spain

Hello, I am a patient who was diagnosed with CREST five years ago, however I had symptoms for a long time before that. I have telangiectasia all over my body, especially in my face, neck and chest, acute Raynaud's and generalized muscular pain.

Nowadays I only take a hormone treatment, since CREST provoked hypothyroidism.

I am writing to let you know that the Puerta de Hierro Hospital in Madrid, Spain, is trying a new treatment with the molecule P144, in humans, and they believe it can help us with the illness. To know more, go to their web page, or Europa Press, where I read the news. Greetings everyone.

To Contact the Author

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

The most important thing in the world to know about scleroderma is sclero.org!