Hello, I am a patient who was diagnosed with CREST five years ago, however I had symptoms for a long time before that. I have telangiectasia all over my body, especially in my face, neck and chest, acute Raynaud's and generalized muscular pain.
Nowadays I only take a hormone treatment, since CREST provoked hypothyroidism.
I am writing to let you know that the Puerta de Hierro Hospital in Madrid, Spain, is trying a new treatment with the molecule P144, in humans, and they believe it can help us with the illness. To know more, go to their web page, or Europa Press, where I read the news. Greetings everyone.
Email: [email protected]
Story edited 04-23-07 JTD
Story posted 06-01-07 SLE
ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español) Marina C: Paciente de CREST
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Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
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