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Marina C: CREST Patient

Spain

Hello, I am a patient who was diagnosed with CREST five years ago, however I had symptoms for a long time before that. I have telangiectasia all over my body, especially in my face, neck and chest, acute Raynaud's and generalized muscular pain.

Nowadays I only take a hormone treatment, since CREST provoked hypothyroidism.

I am writing to let you know that the Puerta de Hierro Hospital in Madrid, Spain, is trying a new treatment with the molecule P144, in humans, and they believe it can help us with the illness. To know more, go to their web page, or Europa Press, where I read the news. Greetings everyone.

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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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