I am a twenty-seven-year-old, and about a year ago I went to a dermatologist because I had pus coming from my scalp, and it covered my head. I got a biopsy, they told me I had lichen planus, and that the only solution for me was to apply a strong medication with cortisone base.
So I do not trust doctors anymore, I have visited at least six and each one has given me their own therapy, mostly experimental treatments and none of them really useful.
In the meantime I have a bald patch in my head where hair will not grow again, and the illness is still advancing, without anyone being able to tell me how to stop it.
I am asking you to please help me understand what I can do, and whom to turn to, because I am not so sure that the doctors I have seen so far understand what the illness is really about.
Email: [email protected]
Story edited 07-14-09 JTD
Story posted 07-23-09 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Marina O: Lichen Planus
Cos'è la Sclerodermia
The Association for Lichen Sclerosis and Vulval Health
Medical: Diseases and Symptoms
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.