I am a twenty-seven-year-old, and about a year ago I went to a dermatologist because I had pus coming from my scalp, and it covered my head. I got a biopsy, they told me I had lichen planus, and that the only solution for me was to apply a strong medication with cortisone base.
So I do not trust doctors anymore, I have visited at least six and each one has given me their own therapy, mostly experimental treatments and none of them really useful.
In the meantime I have a bald patch in my head where hair will not grow again, and the illness is still advancing, without anyone being able to tell me how to stop it.
I am asking you to please help me understand what I can do, and whom to turn to, because I am not so sure that the doctors I have seen so far understand what the illness is really about.
Story edited 07-14-09 JTD
Story posted 07-23-09 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Marina O: Lichen Planus
Cos'è la Sclerodermia
Lichen Planus Online Support Group
Medical: Diseases and Symptoms
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: