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Marina O: Lichen Planus

I have a bald patch in my head where hair will not grow again, and the illness is still advancing.

Straw Hat for Marina by Shelley EnszI am a twenty-seven-year-old, and about a year ago I went to a dermatologist because I had pus coming from my scalp, and it covered my head. I got a biopsy, they told me I had lichen planus, and that the only solution for me was to apply a strong medication with cortisone base.

So I do not trust doctors anymore, I have visited at least six and each one has given me their own therapy, mostly experimental treatments and none of them really useful.

In the meantime I have a bald patch in my head where hair will not grow again, and the illness is still advancing, without anyone being able to tell me how to stop it.

I am asking you to please help me understand what I can do, and whom to turn to, because I am not so sure that the doctors I have seen so far understand what the illness is really about.

To Contact the Author

Email: [email protected]
Story edited 07-14-09 JTD
Story posted 07-23-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Marina O: Lichen Planus
Cos'è la Sclerodermia

The Association for Lichen Sclerosis and Vulval Health
Medical: Diseases and Symptoms

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)