With the course of the years my health became worse until seven years ago. I was diagnosed with systemic lupus erythematosus (SLE). Afterwards, not even a year later, Raynaud's Syndrome and then scleroderma.
I am from Bari, Italy, and every four months I go to Florence, Italy to see Professor Marco Matucci Cerinic. I went to him thanks to my mother, who heard about him on TV. I have to thank this professor, because I have been in treatment for a year, and the illness is stopping. They tell me I am fine, and I feel fine. I can keep going.
I must admit I have been scared of not being able to enjoy life to the fullest, but I trust science. I also thank God for giving me a character that allows me to try and bring hope to other patients every time I was in the hospital.
I believe that recovering is torture if you are lonely with the illness. So the best thing to keep going is smiling!
Email: [email protected]
Story edited 03-12-07 JTD
Story posted 04-11-07 SLE
ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Italiano) Mariposa: Sclerosi Sistemica Progressiva
Digital Ulcers (finger ulcers)
Dr. Marco Matucci Cerinic
Medical: Diseases and Symptoms
Symptoms of Systemic Scleroderma
Systemic Lupus Erythematosus (SLE) Stories
Types of Scleroderma
What is Scleroderma?
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: