Hello, my name is Martha and I have a sister who was diagnosed with scleroderma, based on studies done two weeks ago. She has been ill since childhood, and is now thirty-seven years old, married and has two children.
According to the doctors she has liver problems, as well as in a kidney, although they still need to do further testing.
I was reading everyone's testimony here, and some are very similar to my sister's, so I would like to ask for some help in regard to treatments we could follow, or some suggestions. My sister's symptoms are mainly: tiredness, and sometimes stomach problems.
I really want to congratulate all of you for being so strong and brave to tell your story, and also because you are not giving up. Keep it up.
Martha Email: [email protected] Story edited 04-07-07 JTD Story posted 04-09-07 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS (Español) Martha: Hermana de Paciente con Esclerodermia ENGLISH: Caregiver Stories Medical: Diseases and Symptoms Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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