Hello, I am twenty-five years old and I have been in treatment since I was fifteen, with little improvement on the pathology I have. I feel like it is tearing my head open. Sometimes I get headaches, and I believe it is because of this illness.
I used to feel better, but as time goes by my illness shows more and more. If anyone has found the cure for this, I would appreciate if you would tell me about it. Thank you.
Email: [email protected]
Story edited 04-23-07 JTD
Story posted 04-27-07 SLE
ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español/Spanish) Mary B: Esclerodermia en Golpe de Sabre
(Español/Spanish) Acerca de la Esclerodermia
Mary B: Scleroderma En Coup de Sabre
En Coup de Sabre
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: