Mary B: Scleroderma En Coup de Sabre
Spanish
Hello, I am twenty-five years old and I have been in treatment since I was fifteen, with little improvement on the pathology I have. I feel like it is tearing my head open. Sometimes I get headaches, and I believe it is because of this illness.
I used to feel better, but as time goes by my illness shows more and more. If anyone has found the cure for this, I would appreciate if you would tell me about it. Thank you.
To Contact the Author
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.