SCLERO.ORG
Search
SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Meghann: Morphea Scleroderma

It does not bother me as much when I look in the mirror.

Cactus Flower by Sherrill Knaggs, ISN Artist I am sixteen now and I have had morphea for about two to three years. When I first started to develop small red spots on my trunk (stomach), I thought it was just a rash of some sort. When they got bigger, I thought they were ringworm.

I finally went to the doctor. They gave me some fungal creams and gave me another doctor's name because they did not know what it was.

I went to the other doctor, and she took a biopsy. She called me back about a week later telling me that I have morphea. I was very sad to hear that they would never go away but later new ones might be prevented.

I cried for about a week. By this time they were getting bigger, about the size of a tennis ball. I should be going to a dermatologist right now to keep track of the sizes, but seeing as I am only sixteen and my dad has no time to take me, I am just sitting and watching them get bigger.

Only one of my spots (I have about five or six) is really hard and yellow. When I go out I put a Band-Aid over it and if anyone asks, I tell them the others are bruises. I am afraid to tell anyone that it is morphea, because it sounds so gross.

I am getting more and more afraid that they will spread. But I have to say I am getting more comfortable with them. It does not bother me as much when I look in the mirror, and I am back to wearing a bathing suit. I have just accepted that they are there, and that I cannot do anything about it.

To Contact the Author

Meghann
New email address needed 8-22-03 SLE
Old Email Prefix: tangy17
Story posted 8-26-01

ISN Senior Artist: Sherrill Knaggs
LINKS
Juvenile Scleroderma
Morphea Scleroderma

ISN's Voices of Scleroderma Volume 2

The story on this page is featured in our book, Voices of Scleroderma Volume 2! ISN.

Go to Mel: Just Diagnosed with Systemic Sclerosis
 
 

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.