I am sixteen now and I have had morphea for about two to three years. When I first started to develop small red spots on my trunk (stomach), I thought it was just a rash of some sort. When they got bigger, I thought they were ringworm.
I finally went to the doctor. They gave me some fungal creams and gave me another doctor's name because they did not know what it was.
I went to the other doctor, and she took a biopsy. She called me back about a week later telling me that I have morphea. I was very sad to hear that they would never go away but later new ones might be prevented.
I cried for about a week. By this time they were getting bigger, about the size of a tennis ball. I should be going to a dermatologist right now to keep track of the sizes, but seeing as I am only sixteen and my dad has no time to take me, I am just sitting and watching them get bigger.
Only one of my spots (I have about five or six) is really hard and yellow. When I go out I put a Band-Aid over it and if anyone asks, I tell them the others are bruises. I am afraid to tell anyone that it is morphea, because it sounds so gross.
I am getting more and more afraid that they will spread. But I have to say I am getting more comfortable with them. It does not bother me as much when I look in the mirror, and I am back to wearing a bathing suit. I have just accepted that they are there, and that I cannot do anything about it.
New email address needed 8-22-03 SLE
Old Email Prefix: tangy17
Story posted 8-26-01
ISN Senior Artist: Sherrill Knaggs
The story on this page is featured in our book, Voices of Scleroderma Volume 2! ISN.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: