It started as a small white patch on my neck. It soon grew up my neck, and I have lost hair in that spot. I now have brown and white patches of skin all over my upper back. I am self-conscious of it, so I won't wear my hair up, or wear little tank tops.
My doctor says there's no treatment and that my scars will be there forever. I hate that feeling. The only good thing about this disease is that it makes you a better person. I am modest about myself and am thankful for what I do have.
I have to thank God that that is all I got from the disease. A lot of people have it worse.
Email: [email protected]
Story edited 10-8-02
Story posted 10-9-02 SLE
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.