SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Melissa H: Hereditary Hemorrhagic Telangiectasia (HHT)

I have big red marks on me which I get teased about, but not as much as I used to.

Pink Impatiens for Melissa H by Sherrill Knaggs, ISN Artist Hi, I am Melissa and I was born with hereditary hemorrhagic telangiectasia (HHT). My brother and I both have it, but I have it much worse.

I have big red marks on me which I get teased about, but not as much as I used to. I also have a bad liver, so I am never allowed to drink alcohol. My face is usually red from my heart beating too fast, and my skin is blotchy.

I do not really care any more as I might be getting the red mark removed with laser treatment when I am older, which will be really good. If any one else has this disease, please email me. It would be really cool to hear from you.

To Contact the Author

Melissa H.
New email address needed 07-18-06 SLE
Old Email Prefix: missywasup
Story posted 08-12-04 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Melissa M: Morphea

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)