Hi, I am Melissa and I was born with hereditary hemorrhagic telangiectasia (HHT). My brother and I both have it, but I have it much worse.
I have big red marks on me which I get teased about, but not as much as I used to. I also have a bad liver, so I am never allowed to drink alcohol. My face is usually red from my heart beating too fast, and my skin is blotchy.
I do not really care any more as I might be getting the red mark removed with laser treatment when I am older, which will be really good. If any one else has this disease, please email me. It would be really cool to hear from you.
New email address needed 07-18-06 SLE
Old Email Prefix: missywasup
Story posted 08-12-04 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.