My daily schedule is so bad. I can hardly get out of bed. I can hardly sleep my joints hurt so bad. I cannot even do much housework because I get out of breath easily. I cannot work because I am not always able to get up in the mornings to get to work.
They say I am not eligible for a medical card or disability. I have been fighting for four years. I got a lawyer but the court and state say I am still not disabled. They do not see my scleroderma. They said lupus should not stop me from working.
I am not looking for pity. I just need some answers.
Email: [email protected]
Story edited 10-24-06 JTD
Story posted 10-26-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
What is Scleroderma?
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: