My daily schedule is so bad. I can hardly get out of bed. I can hardly sleep my joints hurt so bad. I cannot even do much housework because I get out of breath easily. I cannot work because I am not always able to get up in the mornings to get to work.
They say I am not eligible for a medical card or disability. I have been fighting for four years. I got a lawyer but the court and state say I am still not disabled. They do not see my scleroderma. They said lupus should not stop me from working.
I am not looking for pity. I just need some answers.
Email: [email protected]
Story edited 10-24-06 JTD
Story posted 10-26-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
What is Scleroderma?
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.