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Missy S: Lupus, Scleroderma, CREST and Depression

I can hardly sleep my joints hurt so bad.

Pink Hello to anyone who has the problems that I have. I need some questions answered if anyone knows how I feel.

My daily schedule is so bad. I can hardly get out of bed. I can hardly sleep my joints hurt so bad. I cannot even do much housework because I get out of breath easily. I cannot work because I am not always able to get up in the mornings to get to work.

They say I am not eligible for a medical card or disability. I have been fighting for four years. I got a lawyer but the court and state say I am still not disabled. They do not see my scleroderma. They said lupus should not stop me from working.

I am not looking for pity. I just need some answers.

To Contact the Author

Missy S.
Email: [email protected]
Story edited 10-24-06 JTD
Story posted 10-26-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Lupus Stories
Scleroderma Experts
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Mo: Mother of Undiagnosed Girl

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)