My daily schedule is so bad. I can hardly get out of bed. I can hardly sleep my joints hurt so bad. I cannot even do much housework because I get out of breath easily. I cannot work because I am not always able to get up in the mornings to get to work.
They say I am not eligible for a medical card or disability. I have been fighting for four years. I got a lawyer but the court and state say I am still not disabled. They do not see my scleroderma. They said lupus should not stop me from working.
I am not looking for pity. I just need some answers.
Email: [email protected]
Story edited 10-24-06 JTD
Story posted 10-26-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
What is Scleroderma?
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: