I am Argentinean. My mother, who is now seventy-six years old, was diagnosed with advanced CREST scleroderma, after thirty years of going through several doctors and suffering without knowing why.
She is now under treatment, but suffers with pulmonary hypertension, calcifications in her trachea, bronchi, and part of a lung. The fingers and toes of her right side present necrosis, and she is in terrible pain due to her legs being affected with calcinosis under the upper part of her foot.
I would like to know if there is something that can help ease the pain and, however slightly, improve her quality of life.
It is awful to see how she gets worse day by day. I feel powerless, because I do not know what to do. She asks God every day for patience.
Thank you for reading this.
New email address needed 10-10-06 SLE
Old Email Prefix: piscis.mg
Story edited 08-16-06 JTD
Story posted 09-26-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Pulmonary Hypertension Stories
(Español/Spanish) Monica O: Hija de Paciente con Esclerodermia CREST
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
We have the world's best supporters! See ISN News.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: