Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Monica O: Daughter of Mother with CREST


Miniature Red Rose by Sherrill Knaggs, ISN Artist I am Argentinean. My mother, who is now seventy-six years old, was diagnosed with advanced CREST scleroderma, after thirty years of going through several doctors and suffering without knowing why.

She is now under treatment, but suffers with pulmonary hypertension, calcifications in her trachea, bronchi, and part of a lung. The fingers and toes of her right side present necrosis, and she is in terrible pain due to her legs being affected with calcinosis under the upper part of her foot.

I would like to know if there is something that can help ease the pain and, however slightly, improve her quality of life.

It is awful to see how she gets worse day by day. I feel powerless, because I do not know what to do. She asks God every day for patience.

Thank you for reading this.

To Contact the Author

New email address needed 10-10-06 SLE
Old Email Prefix:
Story edited 08-16-06 JTD
Story posted 09-26-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Caregiver Stories
CREST Scleroderma
Pulmonary Hypertension
Pulmonary Hypertension Stories
(Español/Spanish) Monica O: Hija de Paciente con Esclerodermia CREST

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Monika K: Morphea Scleroderma

We have the world's best supporters! See ISN News.


SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.

The most important thing in the world to know about scleroderma is!