Hello, my name is Myle and I am a twenty-six-year-old Colombian currently living in Spain. Two years ago I got a spot on my back. I went to a dermatologist, who at first told me it was some type of fungus and treated me accordingly.
But the spot kept on growing and changing in colour and aspect. The skin got really dry, around it. It seemed as if someone had hit me, and the inside turned white.
Since it wouldn't get better, I went to another dermatologist, who did a biopsy and diagnosed morphea. Now I am applying colchicine. The spot is not as hard, but it is still growing.
I have a lot of doubts about my illness still, and I am so scared that it will get worse, since I have a two-year-old baby. It is for her that I have to be strong and healthy, to take care of her. But sometimes, like today, I wake up and am very depressed.
If somebody has the same problem as me, please write to me so we can share doubts, and to know whether you have been treated with something that works better.
Thanks for your attention.
Myle Email: [email protected] Story edited 06-20-07 JTD Story posted 07-27-07 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS (Español/Spanish) Myle: Esclerodermia Morfea ENGLISH: Difficult Diagnosis Morphea Morphea Stories Medical: Diseases and Symptoms Scleroderma Experts (Worldwide) Sclero Forums Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: