She has had five fingers amputated due to severe digital ulcers. Her health has severely declined in the past year. She is scheduled to have two more fingers amputated this month. Hyperbaric treatment has helped with the healing after surgery, but has not helped to prevent future ulcers.
She is now on three liters of oxygen constantly. I hope to find something to help her. She is on a variety of medications including coumadin, pletal, prednisone, and procardia.
Her condition is severe and not getting any better.
Email:Withheld by request
Story edited 11-17-05 JTD
Story posted 01-27-06 SLE
Story Artist: Judy Tarro
Story Editor: Judith Devlin
Judy Tarro, ISN Artist, created the digital photo to illustrate the story on this page.
TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses.
We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: