(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

Myrianisa: Daughter of a Severe Scleroderma Patient

At the same time, she was also diagnosed with lupus, Raynaud's, MCTD, Pulmonary Fibrosis and Fibromyalgia.

My mother was diagnosed with scleroderma six years ago. At the same time, she was also diagnosed with lupus, Raynaud's, MCTD, pulmonary fibrosis and fibromyalgia.

She has had five fingers amputated due to severe digital ulcers. Her health has severely declined in the past year. She is scheduled to have two more fingers amputated this month. Hyperbaric treatment has helped with the healing after surgery, but has not helped to prevent future ulcers.

She is now on three liters of oxygen constantly. I hope to find something to help her. She is on a variety of medications including coumadin, pletal, prednisone, and procardia.

Her condition is severe and not getting any better.

To Contact the Author

ISN Artist: Judy Tarro

Judy Tarro, ISN Artist, created the digital photo to illustrate the story on this page.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: