I have just recently been diagnosed with Raynaud's. My nose is affected and just recently the tops of my hands burn and are cold.
My major concern is my nose. I am now on my third different blood pressure medicine. Nothing seems to help the burning and cold. It is very sore inside of my nose.
I also have the beginning stages of Crohn's, panniculitis, rheumatoid arthritis, and now Raynaud's.
I started Remicade treatments about three weeks ago. I have tried several blood pressure medications that were of no help. Can anyone out there please help me? Thanks.
I am doing a little better on my third blood pressure medication. I am seeing my rheumatologist on Wednesday. I will then have a consultation and my third Remicade treatment. Any help would be greatly appreciated.
Nancy New email address needed 12-20-06 SLE Old Email Prefix: tomnnanc90 Story posted 01-18-06 Story update edited 2-25-06 JTD Story posted 4-21-06 SLE ISN Senior Artist: Sherrill Knaggs Story Editor: Judith Thompson Devlin |
LINKS Difficult Diagnosis Raynaud's Raynaud's Stories |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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