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Paolina F: Essential Telangiectasia

Although benign, it is certainly disfiguring and takes away your confidence in yourself

Pale Green Carnation by Sherrill KnaggsI am a thirty-seven-year-old female diagnosed with Essential Telangiectasia about seven years ago. It initially started on my feet and has progressed to most of my legs, arms, and I have some spots on my torso.

I would love to touch base with other people with this disorder. I understand that there aren't really any viable treatment options, I would love to hear if someone has discovered an effective treatment and of people's stories with the same.

Although benign, it is certainly disfiguring and takes away your confidence in yourself.

To Contact the Author

Paolina
Email: [email protected]
Story edited 04-08-09 JTD
Story posted 05-08-09 SLE

Story Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin

LINKS
Telangiectasia
Telangiectasia Stories
Medical: Diseases and Symptoms
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Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Papa V: Lupus, Antiphospholipid Syndrome, Myasthenia Gravis, and Scleroderma
 

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)