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Paolina F: Essential Telangiectasia

Although benign, it is certainly disfiguring and takes away your confidence in yourself

I am a thirty-seven-year-old female diagnosed with Essential Telangiectasia about seven years ago. It initially started on my feet and has progressed to most of my legs, arms, and I have some spots on my torso.

I would love to touch base with other people with this disorder. I understand that there aren't really any viable treatment options, I would love to hear if someone has discovered an effective treatment and of people's stories with the same.

Although benign, it is certainly disfiguring and takes away your confidence in yourself.

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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.