I am a thirty-seven-year-old female diagnosed with Essential Telangiectasia about seven years ago. It initially started on my feet and has progressed to most of my legs, arms, and I have some spots on my torso.
I would love to touch base with other people with this disorder. I understand that there aren't really any viable treatment options, I would love to hear if someone has discovered an effective treatment and of people's stories with the same.
Although benign, it is certainly disfiguring and takes away your confidence in yourself.
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: