SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Penelope: CREST Scleroderma


Peach Flower by Shelley EnszHello everyone. I am a twenty-six-year-old girl who suffers from CREST scleroderma. I have decided to tell you my story in order to give some reassurance to all patients that have this illness, and also to give them some tips to live their lives to the fullest.

My story begins about two years ago. I was very stressed by my studies, work and certain people around me, and I began feeling the first symptoms that are common among those who have scleroderma. I was tired, my joints ached, and my hands turned different colors. I was worried about this, since it got worse and progressed, so I interned myself at the “"Policlinico di Palermo” hospital, where, after many tests they diagnosed me with it.

Initially I must confess I reacted badly because, and I am not ashamed to say it, I am a very beautiful person, both physically and on the inside, and I dedicate a lot of time to healing my body. I felt like I was crumbling, that everything was against me, that God wanted to punish me for my degree in Economics that I had obtained in record time, my great career in finances, and just overall a great style that so attracted people. But then I realized that if I let myself down, the illness would progress and get worse even further.

So I began my new life. I followed the doctor's orders to the dot, vasodilators, intravenous meds, iloprost and calcium inhibitors in the evening. For my face I used, and still do, super hydrating creams with oils. Physiotherapy and massages have helped a lot.

My advice to everyone would be to believe in yourselves, perhaps you cannot prevent the illness, but you can live normally. It is possible to combat it, and I am living proof of it. The only problem I still have sometimes is the variation in the colour of my hands, but with these cures and thermal gloves everything is good.

Be strong and you'll defeat it.

To Contact the Author

Email: [email protected]
Story edited 07-14-09 JTD
Story posted 07-18-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Penelope: Sclerodermia CREST
Cos'è la Sclerodermia
Raynaud Storie di Pazienti
Tipi di Sclerodermia: Limitata
Tipi di Sclerodermia: Limitata Storie

CREST Syndrome
CREST Syndrome Stories
Raynaud's Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Peter: Burn Survivor with Scleroderma

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.