Hello, My name is Robin. I have been very confused about all of this. About twelve years ago, I started to have symptoms. I had these strange bumps on my hands. They biopsied it, and said they did not know what it was. They sent me to a specialist, who said I had lupus.
They sent me to another doctor, who said they were wrong, that I had hypothyroidism, and put me on Synthroid. While I was pregnant with my son in 1990, they induced labor, because my body was attacking him. Something to do with anti-M. I still do not know what that means.
I also have been diagnosed with a seizure disorder, which took years to figure out. They told me I was under stress, due to my husband having Hepatitis C, and going through a liver transplant.
I have the symptoms of night time body itching, swollen joints, mostly in my hands and knuckles. I have severe memory loss. My poor family knows I can't remember how to get places, what precious things they have done, how to keep my job things in my brain, or anything else since this has all started.
I figured most of it had to do with the seizures, and all the medications I have gone through. I am just wondering if this is diagnosed right. I have positive ANA, and low C3 and C4 (whatever that means).
I am hoping that someone can help me sort this all out. I know that there is some kind of arthritis or autoimmune disorder, just not sure which. Any suggestions would be greatly appreciated.
On the lighter note; I have three children, ages sixteen, fifteen, and eleven; and a twenty-six-year-old stepson with two children, so I am a thirty-eight-year-old grandma, and enjoy every moment. My husband and I have been married for eighteen years, and he is doing okay with his health at this time. I refuse to let the doctors tell me that all of my health issues are stress related. I am sure it does not help, but it is not the baseline diagnoses.
Thank you for any input. Have a great day.
New email address needed 08-06-09 SLE
Old Email Prefix: RobinMack757
Story posted 4-26-02
Story Artist: Shelley Ensz
Pregnancy and Scleroderma
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Pam Hop, Margaret Roof, Winifred Schillberg, Arnold Slotkin, and Juliet Youkhana. Plus donations in honor of Kim Thwaits, and in loving memory of Marta Marx, Jim Miller, and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: