SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Rose M: CREST Syndrome

I am just learning to take baby steps every day versus the hurry up and do it way I was living before.

Rose M.I would first like to thank this web site for the valuable information, personal stories and the opportunity to connect with others who are experiencing what I am. I have many friends and relatives here in the Houston, Texas area, but this disease is nothing they can fully understand as well as my friends here can.

I was finally correctly diagnosed with CREST after two years of thinking I was going crazy. I did not have insurance until this year so I am finally on some medications that hopefully will help me out some. I am also involved with a research study at the local medical center and am trying to become more active in any support groups I can find. Time and energy are not my most positive attributes.

Pink Hebe by Sherrill Knaggs, ISN Artist Right now the most pain I am experiencing is with these finger ulcers and calcium 'thing-a-mi-jigs' (calcium deposits) on my elbows. Everything else has become a part of my life. I am just learning to take baby steps every day versus the hurry up and do it way I was living before.

I am interested in any home treatments or natural (herbal), alternatives for pain relief that anyone has had success with. I find myself taking too many pain pills because I am such an wimp when I am hurting; but of course that just worsens the stomach ulcer.

I will try to keep up with this posting with updates and photos and I am sincerely looking forward to meeting any new scleroderma friends.

Take care.

To Contact the Author

Rose M.
Email: [email protected]
Story posted 1-5-04

Photo submitted by Rose M.
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Alternative Therapies
Calcium Deposits
CREST Syndrome
Difficult Diagnosis
Finger Ilcers
Types of Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Rosebud: Diffuse Scleroderma
 
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Jim Miller, Arlene Marie Petulla, Frances Maude Baldwin Watson and Rubye Mai Blocker Westmoreland.
Thanks to Winn Schillberg for donating to scleroderma research.
Donate or Shop Now
 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.