I would first like to thank this web site for the valuable information, personal stories and the opportunity to connect with others who are experiencing what I am. I have many friends and relatives here in the Houston, Texas area, but this disease is nothing they can fully understand as well as my friends here can.
I was finally correctly diagnosed with CREST after two years of thinking I was going crazy. I did not have insurance until this year so I am finally on some medications that hopefully will help me out some. I am also involved with a research study at the local medical center and am trying to become more active in any support groups I can find. Time and energy are not my most positive attributes.
Right now the most pain I am experiencing is with these finger ulcers and calcium 'thing-a-mi-jigs' (calcium deposits) on my elbows. Everything else has become a part of my life. I am just learning to take baby steps every day versus the hurry up and do it way I was living before.
I am interested in any home treatments or natural (herbal), alternatives for pain relief that anyone has had success with. I find myself taking too many pain pills because I am such an wimp when I am hurting; but of course that just worsens the stomach ulcer.
I will try to keep up with this posting with updates and photos and I am sincerely looking forward to meeting any new scleroderma friends.
Email: [email protected]
Story posted 1-5-04
Photo submitted by Rose M.
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.