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Rubie: Linear Morphea Scleroderma

My mum noticed a small rough patch on my abdomen.

Apricot Hibiscus by Sherrill Knaggs, ISN Artist My story started about thirteen years ago on my first summer outside. At the age of one I had my first summer out and about in the sun. My mum noticed a small rough patch on my abdomen. She immediately took me to the hospital as she thought it was a burn.

The doctors told her it was not a burn but ran lots of test and biopsy and found nothing. I was referred to a dermatologist and was finally diagnosed with linear morphea at the age of four.

Now at fourteen, the morphea has spread dramatically, mostly down the left side of my body. I have the pigmentation down the left leg, across the abdomen, the back and a small patch on my left ankle.

My treatment at the moment is working extremely well. The morphea has stopped spreading.

To Contact the Author

Email: Withheld
Story edited 12-10-07 JTD
Story posted 01-15-08 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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